Let’s Find A Cure
Hello! My name is Darren and I have a skin condition known as Necrobiosis Lipoidica. This condition becomes a real drag when it comes to every day life, and even minor cuts and abrasions can threaten life and limb. I started this website as an encouragement to people who are not satisfied with a diagnosis of “wow you’re stuck with that… bummer.”
Also check out the resources page for Facebook groups where you can connect with others who are dealing with the same things as you.
here are some frustrating facts
- You can have a BMI in the normal range and still have NL / NLD.
- You can be non-diabetic and not pre-diabetic and still have NL / NLD.
- When our BMI is higher than expected we are statistically more likely to deal with other health problems.
- If BMI is high, reducing it to normal makes sense as the first step in improving our metabolic performance.
There are probably many layers to this issue, but for me BMI is something I can change so that’s where I’m working right now. The last few years have shown me some success, and that the process takes time. Dedication to the end goal and willingness to adjust strategy over time are vital to success.
- Aerobic exercise (jogging) 30 minutes 3 times weekly
- Ketogenic Diet
- Make a note of BMI at least every couple of weeks
Nothing fancy here. Just consistency.
The ketogenic diet has been helpful over the last couple of years, because it helps me to achieve results and has proven to be a plan I can stick with over time. I think that’s the key to an eating plan. Something that yields results, and something we can stick with over time. If you’re interested in a ketogenic diet, I recommend researching it thoroughly and connecting with a great support network.
Research is important. Because you have NL / NLD your health profile is already complicated. Many people use a ketogenic diet as a fad diet to drop weight. Your journey is more serious, and your metabolism is unique. Choose carefully and deliberately, and pay close attention as you go.
This condition and diabetes go hand in hand. Okay. I get it. As one of those in the smaller grouping I consider myself a wildcard. And regardless of whether my circumstances are self-made or luck of the draw I am heeding the warning signal that my physical body has offered me. My approach is two-fold:
- I am trying to understand both T1D and T2D better, as well as the conditions which may precede development of either.
- I am vigorously attempting to reverse decades of poor diet and exercise habits, with emphasis on anything I can do to improve the way my body deals with glucose.
This year I switched my exercise routine from walking to running, hence the running shoes at the top of the page. Originally I was stuck at a certain BMI and couldn’t break past it to the next goal on my way to the BMI recommended in the Newcastle study. So running quickly helped me to break through that barrier. As I’ve been doing it though, I’ve noticed an improvement in breathing and circulation, stamina, energy, etc. It seems to have widespread benefits beyond burning calories. And that’s giving me hope. I’m hopeful that these changes are all in the correct direction – that somehow through changing my metabolism we can get the body working the way it was before this NLD showed up.
Improving glucose tolerance may just be scratching the surface, or may be misguided. This could be a pancreas function thing, or a compatibility thing where my particular body isn’t liking something I’m putting in it. It could be neither – I may be completely wrong, but why not focus as much energy on this idea as possible until a better idea comes along? At this point I do not intend to acquiesce in my current state of being.
With that said, it seems to be healing well so far. Here’s how I’ve treated the wound:
- Gently cleaned it with a DRY sterile gauze sponge within 30 minutes of getting the cut
- Covered it immediately with a Mepilex border
- Began keeping it completely dry at all times
I’ve kept it dry even when bathing, and have changed Mepilex borders every couple of days as it has closed up. Today, after about 8 days it seems to have closed up for the most part.
I hope this will be helpful to someone.
This post is provided for informational purposes only; please consult your medical professional for anything relating to wound care.